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X-WR-CALDESC:Events for KESHO
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DTSTART:20240101T000000
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BEGIN:VEVENT
DTSTART;TZID=Africa/Nairobi:20250619T190000
DTEND;TZID=Africa/Nairobi:20250619T203000
DTSTAMP:20260613T215606
CREATED:20250414T202032Z
LAST-MODIFIED:20250806T125949Z
UID:24414-1750359600-1750365000@kesho-kenya.org
SUMMARY:Sickle Cell Disease
DESCRIPTION:Date: 19 June 2025 | Time: 7:00 – 8:30 PM EAT \nModerator: Dr Peter Oyiro \nProf. Jessie Githang’a – Sickle Cell Clinical Trials in Kenya \nProf. Jessie Githang’a emphasized the need for more SCD clinical trials in Africa\, where the disease burden is greatest. She outlined the underrepresentation of African populations in global trials and highlighted the benefits of local research\, including better understanding of drug efficacy\, safety\, and socio-genetic differences. She discussed ongoing and past trials in Kenya involving Hydroxyurea\, Crizanlizumab\, and gene therapies\, noting challenges like infrastructure gaps and limited expertise. Prof. Githang’a called for improved research capacity\, team collaboration\, and greater engagement with trial participants. \nDr. Doreen Mutua – Management of SCD in the 21st Century \nDr. Doreen Mutua reviewed modern SCD management\, highlighting the importance of early diagnosis\, health maintenance\, and Hydroxyurea therapy. She addressed common complications like stroke\, chronic pain\, and organ damage\, and emphasized early intervention to prevent progression. Transition of care for adolescents\, genetic counseling\, and curative options such as HSCT and gene editing were also discussed. Her presentation underscored the need for advocacy\, access to comprehensive care\, and integration of newborn screening into national systems.
URL:https://kesho-kenya.org/event/sickle-cell-disease-2/
CATEGORIES:CME 2025,Continuing Medical Education (CME)
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